Section Editor - Robert Gray, Ph.D.
Kennedy Krieger Institute

Pediatric Neuropsychology Links -
Table of Contents

• Pediatric Neuropsychology Resources
• Resources for Parents & Children
• Pediatric Disorders
• Autism/Pervasive Developmental Disorders
• Genetic/Chromosomal Disorders
• Attention Deficit Hyperactivity Disorders
• Learning & Communication Disorders
• Children's Hospitals, Clinics & Training Sites
• Pediatric Neuropsychology Journals
• Pediatric Neuropsychology E-groups
• Recommended Books & Materials

Pediatric Neuropsychology Resources

• American Academy of Child & Adolescent Psychiatry
• American Academy of Pediatrics - References and resources for pediatric specialists
• Child Neurology Home Page - Resources and references for patients and professionals including an online course illustrating available internet resources in the area of child neurology
• The National Institute of Mental Health website with numerous references related to child and adolescent mental health
• Internet drug index - Part of the Healthcentral.com Network
• National Institute of Child Health and Human Development
• National Organization for Rare Disorders - Includes 3 large databases (Rare Disease Database, Organizational Database, Orphan Drug Designation Database)
• OMIM - Online Mendelian Inheritance in Man - catalog of human genes and genetic disorders
• PediatricNeurology.Com - contains select information on topics of interest to parents and other care-givers of children with neurological problems.
• School Psychology Resources Online - Loaded with links covering specific disorders, assessment resources, educational law and parent info
• Specific Diagnoses Card Catalog - Comprehensive database created by the Family Village Web Site

Resources for Parents & Children

• BBC radio lecture series - The Emerging Mind – intriguing neuroscience lectures and a useful interactive brain glossary
• Children Youth and Families Education and Research Network - Research based information for parents and families.
• Kid Source OnLine - Education and healthcare information for parents
• Medline Health Information on Infant and Toddler Development - information on developmental milestones, nutrition, anatomy, and specific concerns/conditions.
• National Education Association – In depth information regarding special education/IDEA and no child left behind
• NICHCY (National Information Center for Children and Youth with Disabilities) Dissemination Center - Information on IDEA, special education law, No Child Left Behind and research-based information on effective educational practices.
• Neuroscience for Kids! – interactive experiments and activities as well as links to multiple internet neuroscience resources
• US Department of Education - parent guide to special education law

Pediatric Disorders

• AIDS/HIV - collaborative site hosted by the François-Xavier Bagnoud (FXB) Center and the Center for HIV Information (CHI)
• Brain Injury - Brain injury resources and information
• Cerebral Palsy - United Cerebral Palsy
• Conduct Disorder - links to information regarding CD diagnosis, treatment and research
• Cornelia de Lange Syndrome ( CdLS ) Foundation, Inc.
• Epilepsy Foundation of America
• Leukemia Society of America
• Mental Retardation - The Arc of the United States
• Pediatric Neurosurgery at USC - excellent resource covering physiology, anatomy and treatment of a variety of pediatric conditions (tumors, trauma, hydrocephalus)
• Tourette Syndrome - Tourette Syndrome Association

Autism/Pervasive Developmental Disorders

• Asperger Syndrome: O.A.S.I.S. On-Line Asperger Syndrome Info & Support
• Autism at Yale - Yale University - Evaluation and Research of Autism, Asperger's Syndrome, and the Pervasive Developmental Disorders
• Division TEACCH - Autism Information - Home Page of Division TEACCH (Treatment and Education of Autistic and related Communication Handicapped Children
• National Alliance for Autism Research

Genetic & Chromosomal Disorders

• Chromosomal Mosaicism Website - information for patients, families, health care providers, students and the general public on the unique conditions of chromosomal mosaicism
• Cystic Fibrosis Foundation
• Down Syndrome WWW Page
• Fragile X Research Foundation Website (FRAXA)
• International Rett Syndrome Association
• Leukodystrophies - United Leukodystrophy Foundation
• Neurofibromatosis - National Neurofibromatosis Foundation
• The Organic Acidemia Association - loaded with information on organic acidemias and other inborn errors of metabolism
• Prader-Willi Syndrome Association
• Sturge -Weber Foundation Website
• Williams Syndrome Association

Attention Deficit Hyperactivity Disorders

• ADHD e-BOOK (free) - this resource e-book emphasizes current executive function research as the key to understanding and treatment. It empathically summarizes the best treatment advice; and includes chapter for parents, teachers, and the kids.
• Children and Adults With Attention Deficit Disorders - National non-profit organization representing children and adults with attention-deficit/hyperactivity disorder
• The National Attention Deficit Disorder Association

Learning & Communication Disorders

• Central Auditory Processing Disorders - Resources for parents of children with CAPD
• Dyslexia - The International Dyslexia Association formerly The Orton Dyslexia Society
• Learning Disability Resources - LD online
• Nonverbal learning disorders - NLDline
• Speech Language Pathology Website - information service to anyone who is interested in learning about speech and language development and associated disorders

Children's Hospitals, Clinics & Training Sites

• Center for the Study of Development and Learning - Chapel Hill, North Carolina - Neuropsychology consultation services
• Children's Hospital - Boston - Internship and postdoctoral positions in pediatric neuropsychology
• Children's Hospital - Denver - Neurology and neuropsychology services
• Children's Hospital of Philadelphia - Department of Psychology - pre and postdoctoral training
• Children's Memorial Hospital in Chicago - child and adolescent psychiatry outpatient services
• Kennedy Krieger Institute - Baltimore, Maryland - Department of Neuropsychology offers pre and postdoctoral training in pediatric neuropsychology
• St. Louis Children's Hospital - Pediatric psychology and neuropsychology services
• Texas Children's Learning Support Center - provides pediatric neuropsychological and psychological services and training

Pediatric Neuropsychology Journals

• American Academy of Pediatrics Online Journal
• Archives of Pediatrics & Adolescent Medicine
• Child Neuropsychology
• Developmental Neuropsychology
• Developmental Psychology
• Journal of the American Academy of Child and Adolescent Psychiatry
• Journal of Pediatric Psychology
• The Journal Watch Pediatrics - Edited and reviewed by more than 80 physicians, JWatch regularly combs 180 medical journals for important findings in Pediatrics.
• School Psychology Quarterly

Pediatric Neuropsychology E-Groups

• The International Mail List for Pediatric Neuropsychologists. Subscribe by sending an email to the list moderator at hughe029@umn.edu.
• Child-Neuro E-Mail List - The mail list CHILD-NEURO@WAISMAN.WISC.EDU is an international discussion group which deals with clinical and research topics in Child Neurology. Parents of children with neurological problems may wish to subscribe to Child- Neuro -Parent.

Recommended Books & Materials

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Copyrighted © 2013. J.N.Browndyke , Ph.D. All rights reserved.